ETHICS, GENDER, REGULATION AND USE OF DATA An interdisciplinary training school for inclusive research and responsible use of data in haemoglobinopathies 1 – 3 July 2026 Department of Computer Science - University of Bari Aldo Moro | Bari The 18th edition of the...
HemaFAIR, in collaboration with the HELIOS (COST Action) network, has contributed to the public consultation launched by the European Commission on the forthcoming Action Plan for Women in Research, Innovation and Startups, providing input on a key priority for the...
On 6 February 2026, the Gender Equality in the EU webinar took place. The event was organised within the HemaFAIR project in collaboration with HELIOS Cost Action. The webinar was delivered by Annalisa Landi, researcher at Fondazione Gianni Benzi and Ethics, Gender...
A new scientific publication entitled “Mapping Expertise and Educational Needs for Hemoglobinopathies: Insights from HELIOS COST Action Healthcare Professionals” has been published in the journal Blood Global Hematology. The article is part of the activities of the...
A new scientific publication entitled “HELIOS Action: Advancing research, education, and equity in haemoglobinopathies across Europe and beyond” has been published in the HemaSphere journal. The article focuses on the HELIOS Action – Haemoglobinopathies in European...
Fondazione Gianni Benzi took part in the 20th edition of the Annual Sickle Cell & Thalassaemia Conference (ASCAT), which took place in London from 1 to 4 October 2025. This major international event, organised in collaboration with the European Hematology...
Fondazione Gianni Benzi participated in the COST Connect – Gender Equality Plans in COST Actions event, held in Brussels on 13 May 2025. The initiative, organised by COST (European Cooperation in Science and Technology), represented an important opportunity for...
On 12-15 May 2025, Fondazione Gianni Benzi participated in the FAIR Principles Training School organised by HemaFAIR in collaboration with the HELIOS Network in Larnaca, Cyprus. Participants had the opportunity to explore how research data can be made Findable,...
We are pleased to announce that our researcher, Mrs. Annalisa Landi, recently give a talk entitled "ELSI and Data Protection for Rare Diseases Data". This insightful presentation was part of the HemaFAIR project, which aims to promote the application of FAIR...
Fondazione Gianni Benzi is pleased to invite you to follow the HELIOS webinar series, an initiative for which it provides organisational support as a member of the project's communication and dissemination team. Each month renowned experts will present the latest...