The joint monothematic conference of the Italian Society of Pharmacology (SIF) , entitled “ Shaping the Future of Pediatric Health: Innovative Research Approaches for Rare and Metabolic Diseases in Children ”, took place on 23–24 February 2026 at the Palazzo Ateneo of...
On 6 February 2026, the Gender Equality in the EU webinar took place. The event was organised within the HemaFAIR project in collaboration with HELIOS Cost Action. The webinar was delivered by Annalisa Landi, researcher at Fondazione Gianni Benzi and Ethics, Gender...
Fondazione Gianni Benzi took part, from 4 to 7 November 2025, in the EP PerMed Implementation School on Personalised Medicine – Data-driven Research and Implementation , held in Zaragoza at the CIBA – Aragon Health Sciences Institute. The School, organised by the EP...
Fondazione Gianni Benzi joined in the 2nd ERDERA General Assembly 2025, held this year in Amsterdam and bringing together the European community committed to rare disease research. It was an important moment not only to review the outputs of the first year of the...
Fondazione Gianni Benzi took part in the World Orphan Drug Congress 2025, which once again gathered institutions, industry, researchers, regulators and patient organisations to address key challenges in the field of rare diseases. Viviana Giannuzzi, Head of the...
Fondazione Gianni Benzi took part in the 20th edition of the Annual Sickle Cell & Thalassaemia Conference (ASCAT) , which took place in London from 1 to 4 October 2025. This major international event, organised in collaboration with the European Hematology...
As part of the FAIR Training School 2025 – Advancing FAIR data practices for rare disease research, organised by ERDERA and hosted by the World Duchenne Organization , our researcher, Annalisa Landi, held a session on “Data Protection, Ethics and Regulatory Aspects”....
Fondazione Gianni Benzi participated in the COST Connect – Gender Equality Plans in COST Actions event , held in Brussels on 13 May 2025. The initiative, organised by COST (European Cooperation in Science and Technology), represented an important opportunity for...
On 12-15 May 2025, Fondazione Gianni Benzi participated in the FAIR Principles Training School organised by HemaFAIR in collaboration with the HELIOS Network in Larnaca, Cyprus . Participants had the opportunity to explore how research data can be made Findable,...
On 2–3 May 2025, Dr Silvia Torretta from Fondazione Gianni Benzi participated as a speaker in the Training Event on Paediatric Clinical Research for Young People Living with a Rare Disease , organised by the TEDDY Network within the framework of the ERDERA Project....