The Crowne Plaza Hotel in Brussels hosted the kick-off meeting of the ARISE project. The meeting, held on 15–16 January 2019, officially launched the activities of this project, coordinated by the Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus (Italy) and...
On 30-31 January 2019, the European Joint Programme on Rare Diseases officially kicked off in Paris, at the Institut IMAGINE. This important initiative brought together over 130 institutions from 35 countries to create a comprehensive, sustainable ecosystem that...
On 29-30 November in Warsaw Fondazione Gianni Benzi and the Children’s Memorial Health Institute (IPCZD) are organizing the SMART Final Open workshop “Paediatric Foresight Training Course: Current status and future changes in the European paediatric biomedical...
The CloSed consortium met in Amsterdam for the final project meeting on 6 to 7 November 2018. The Dutch patient association involved in the project, VSOP (Vereniging Samenwerkende Ouder – en Patiëntenorganisaties), hosted this meeting at the Crowne Plaza Amsterdam – South.
Madrid played host to the 2nd EPIICAL General Assembly meeting from 14 to 16 November 2018. We were pleased to welcome our project partners from 26 organisations across 4 different continents for a stimulating and engaging three-day event. ViiV Healthcare, which...
How was the role of patients conceived in the processes of generating new therapies, and what was envisioned for the future of patient associations? When and where was their contribution needed? What should institutions and other stakeholders have done to respond to...
The EMA premises hosted, on 7-8 June 2018, the annual workshop of theEuropean Network of Paediatric Research (Enpr-EMA), the network of research networks, investigators, and centres with strong expertise in conducting clinical studies in children. The network had 46...
Fondazione Gianni Benzi was one of the influential voices at the 58th edition of the annual AFI Symposium, which was held in Rimini (Italy) from June 6th to 8th. On June 8th, Viviana Giannuzzi, Coordinator of the Scientific Committee, gave a speech during the 12th...
On May 5th, the President of Fondazione Gianni Benzi, Prof. Adriana Ceci, served as the moderator of the first session of the event “Il bambino emofilico III…Generazione futuro”, held in Bari at Villa Romanazzi Carducci. The session was attended by outstanding experts...
The annual meeting of PedCRIN (Paediatric Clinical Research Infrastructure Network) was held on 23rd and 24th April in Bergen (Norway) at the Scandic Ørnen Hotel. The project, funded by the H2020 programme, brought together the European Clinical Research...
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