HemaFAIR

Through an international partnership with experts in the field, HemaFAIR aims to raise the scientific profile and competitiveness of The Cyprus Institute of Neurology and Genetics (project coordinator) to improve the position of researchers in Cyprus in the fields of biomedical informatics and rare haematological diseases (RHDs), with a focus on the use of FAIR data and standards in research and education.

ROLE OF THE FOUNDATION

The Foundation is responsible for the regulatory, ethical, legal and social issues of the project, and contributes to the design and implementation of the HemaFAIR training programme.

FUNDED BY: This project is funded by the European Union under Horizon Europe (project No. 101159589)

DURATION: Jul 2024 - June 2027

PARTNERS:

www.hemafairproject.eu

View all the project updates

HemaFAIR and HELIOS contribute to the EU public consultation on the Action Plan for Women in Research, Innovation and Startups

Gender equality: webinar on the EU framework

Fondazione Gianni Benzi at the 20th ASCAT Conference

FAIR Principles Training School

Annalisa Landi's lecture on ELSI anda data protection for rare diseases data

19th Annual ASCAT Conference

HemaFAIR: kick-off meeting

45

View all the project updates

New ARISE publication highlights key priorities for Sickle Cell Disease Care in Nigeria

Published the texts of the Regulation and the Directive as deriving from the trilogues negotiations

HemaFAIR and HELIOS contribute to the EU public consultation on the Action Plan for Women in Research, Innovation and Startups

First RNA-targeted drug authorised by EMA for prophylaxis purposes

SIF conference on paediatric health and rare diseases

45