HemaFAIR
HemaFAIR aims to unravel the scientific excellence and innovation potential of a Widening country (Cyprus), through an EU network of excellence on the use of FAIR principles in rare haematological diseases (RHD) research.
Through an international partnership with experts in the field, HemaFAIR aims to raise the scientific profile and competitiveness of The Cyprus Institute of Neurology and Genetics (project coordinator) to improve the position of researchers in Cyprus in the fields of biomedical informatics and rare haematological diseases (RHDs) and strengthening the research management and administrative skills. Notably, the research component of HemaFAIR will demonstrate the FAIRification process on two existing platforms for haemoglobinopathies, a group of RHDs that are particularly prevalent in Cyprus, thus maximising the impact of the project on the local society.
ROLE OF THE FOUNDATION
The Foundation is responsible for the regulatory, ethical, legal and social issues of the project, and contributes to the design and implementation of the HemaFAIR training programme.
FUNDED BY: Horizon Europe–Twinning Bottom-Up, GA 101159589, 2024-27 (www.cordis.europa.eu/project/id/101159589)
DURATION: July 2024 - June 2027
PARTNERS:
- The Cyprus Institute of Neurology and Genetics, Cyprus (coordinator)
- Amsterdam University Medical Center, The Netherland
- Fondazione per la Ricerca Farmacologica Gianni Benzi - ETS, Italy
- Leiden University Medical Center, The Netherland
- Vall d’Hebrón Institut de Recerca, Spain
View all the project updates
Annalisa Landi at the HemaFAIR Federated Learning Hackathon
HemaFAIR and HELIOS contribute to the EU public consultation on the Action Plan for Women in Research, Innovation and Startups
Gender equality: webinar on the EU framework
Fondazione Gianni Benzi at the 20th ASCAT Conference
FAIR Principles Training School
Annalisa Landi’s lecture on ELSI anda data protection for rare diseases data
19th Annual ASCAT Conference
