Every year on 19 June, World Sickle Cell Disease Day is observed, providing an important opportunity to shine a spotlight on one of the most common inherited haemoglobinopathies worldwide and to promote greater awareness of a condition that is still often poorly...
May 8 is International Thalassaemia Day. Thalassaemia is one of the most common inherited disorders worldwide, with a significant clinical and healthcare impact, yet it is classified as a rare disease. Even today, it remains poorly understood and is often surrounded...
A new scientific publication entitled “Mapping Expertise and Educational Needs for Hemoglobinopathies: Insights from HELIOS COST Action Healthcare Professionals” has been published in the journal Blood Global Hematology. The article is part of the activities of the...
A new scientific publication entitled “HELIOS Action: Advancing research, education, and equity in haemoglobinopathies across Europe and beyond” has been published in the HemaSphere journal. The article focuses on the HELIOS Action – Haemoglobinopathies in European...
On 19 June, the World Health Organization (WHO) released its first-ever global guideline on the management of sickle cell disease (SCD) during pregnancy, addressing a critical and growing health challenge that can have life-threatening consequences for both women and...
This year's Nobel Prize in Medicine has been awarded to two American researchers: Dr. Victor Ambros and Dr. Gary Ruvkun, who discovered microRNAs (miRNAs), a new class of small RNA molecules that play a crucial role in gene regulation. Ambros and Ruvkun's discovery...
Fondazione Gianni Benzi is pleased to invite you to follow the HELIOS webinar series, an initiative for which it provides organisational support as a member of the project's communication and dissemination team. Each month renowned experts will present the latest...
Fondazione Gianni Benzi is pleased to announce the publication of a new article in the journal Hemato. The article, titled Design and Implementation of a Sickle Cell Disease Electronic Registry in Resource Limited Setting in Nigeria—A Pilot Study was co-authored by...
The Annual Scientific Conference on Sickle Cells and Thalassaemia is a leading global event for healthcare professionals. It offers a comprehensive overview of the latest advances in the diagnosis, treatment and emerging fields of haemoglobinopathies. Find out more...
The Foundation announces the launch of a new 36-month project called HemaFAIR, funded under the European Commission's Horizon Europe Twinning Bottom-Up programme (project No. 101159589). HemaFAIR, led by The Cyprus Institute of Neurology and Genetics, is conducted in...
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