Every year on 19 June, World Sickle Cell Disease Day is observed, providing an important opportunity to shine a spotlight on one of the most common inherited haemoglobinopathies worldwide and to promote greater awareness of a condition that is still often poorly...
May 8 is International Thalassaemia Day. Thalassaemia is one of the most common inherited disorders worldwide, with a significant clinical and healthcare impact, yet it is classified as a rare disease. Even today, it remains poorly understood and is often surrounded...
19 June is World Sickle Cell Day each year, providing a key opportunity to raise awareness of the impact of this genetic blood disorder, which affects millions of people worldwide, primarily those of African, Asian and Mediterranean descent. Sickle cell disease is a...
8 May is the World Thalassaemia Day, a major opportunity to raise public awareness about this blood disorder that affects millions of people worldwide. Thalassaemia is a type of haemoglobinopathy, a genetic condition that impairs the production of haemoglobin – the...
Today, June 19th, marks World Sickle Cell Day, an opportunity to raise awareness about a rare blood disorder that affects millions of people worldwide. Fondazione Gianni Benzi, committed to research and improving the lives of patients, reaffirms its dedication to the...
On the occasion of International Thalassaemia Day, celebrated every year on May 8th, Fondazione Gianni Benzi reaffirms its commitment to the fight against this genetic blood disease. Thalassaemia represents a major public health challenge, affecting thousands of...
Let’s celebrate the World Sickle Cell Day 2023
May 8th, 2023 is the International Thalassaemia Day. The theme of the event this year is “BE AWARE.SHARE.CARE.: Strengthening Education to Bridge the Thalassaemia Care Gap”
Despite being a common disorder in some regions such as Europe, we cannot forget that Thalassaemia is a rare disease. But nowadays, thanks to blood transfusions and chelation therapy, surviving and life quality of thalassaemic patients have notably improved. The Guide...
Recent posts in Haemoglobinopathies, News