This project aims to build a network of excellence to integrate, harmonise and disseminate existing knowledge on haemoglobinopathies, including sickle cell anaemia and thalassaemic syndromes. It also aims to develop innovative services and tools, improving accessibility to knowledge and healthcare throughout Europe and beyond. HELIOS' five working groups focus on various aspects of haemoglobinopathies, from clinical and molecular research to data analysis and bioinformatics, with the aim of advancing healthcare systems, contributing to informed policies and improving the survival and quality of life of current and future patients.

ROLE OF THE FOUNDATION
The Foundation staff has an active role in several HELIOS activities, including chairing Working Group 5, “Dissemination and outreach”, with an emphasis on public awareness, network expansion and strategies for sustainability beyond the official completion of the project.

FUNDED BY:  COST Association (European Cooperation in Science and Technology)

DURATION: Sep 2023 - Sep 2027

PARTNERS:

• The Cyprus Insitute of Neurology & Genetics, Cyprus
• Vall d’Hebrón Institut de Recerca, Spain
• National and Kapodistrian University of Athens, Greece
• Aristotle University of Thessaloniki, Thessaloniki, Greece
• Copenhagen University Hospital – Rigshospitalet, Denmark
• Inria, France
• ERN-EuroBloodNet – AP-HP hôpital Saint, France
• University of Padova, Italy
• Clinic for hematology, University Clinical Center, Serbia
• Ege UniversityEge University, Faculty of Medicine Department of Medical Genetics, Turkey
• King’s college London, United Kingdom