A new collaborative scientific publication from the ARISE project highlights critical priorities in the care of healthcare professionals dealing with Sickle Cell Disease (SCD), particularly in high-burden settings such as Nigeria. The study, titled “Healthcare...
The texts of the forthcoming European Pharmaceutical Package, including a Directive and a Regulation[1], as agreed during the interinstitutional negotiations concluded in December 2025, have been made publicly available on 6 March. These texts also received positive...
HemaFAIR, in collaboration with the HELIOS (COST Action) network, has contributed to the public consultation launched by the European Commission on the forthcoming Action Plan for Women in Research, Innovation and Startups , providing input on a key priority for the...
RNA-targeted agents are drugs based on short single or double stranded nucleic acid molecules (known as antisense oligonucleotides) which are designed to bind specific RNA sequences, ultimately altering the expression of targeted genes. They represent an emerging area...
The joint monothematic conference of the Italian Society of Pharmacology (SIF) , entitled “ Shaping the Future of Pediatric Health: Innovative Research Approaches for Rare and Metabolic Diseases in Children ”, took place on 23–24 February 2026 at the Palazzo Ateneo of...
On the occasion of Rare Disease Day 2026, Fondazione Benzi is promoting a series of videos featuring members of its Scientific Committee and distinguished international experts, focusing on key issues in research, therapies and access to medicines. The series opens...
An extraordinary study, the result of research conducted at the Bambino Gesù Children’s Hospital (Italy) in collaboration with the University of Erlangen (Germany), was recently published in Nature Medicine. Eight paediatric patients, suffering from autoimmune...
On 6 February 2026, the Gender Equality in the EU webinar took place. The event was organised within the HemaFAIR project in collaboration with HELIOS Cost Action. The webinar was delivered by Annalisa Landi, researcher at Fondazione Gianni Benzi and Ethics, Gender...
The International Council for Harmonisation (ICH) entitled “ICH E22 General considerations for patient preference studies” has released a draft scientific guideline open for public consultation on the EMA website until12 April 2026. The aim of this harmonised...
On 11 December 2025, a landmark political agreement was reached by the European Commission (EC), the European Parliament and the Council of the European Union on the comprehensive reform of the EU pharmaceutical legislation. The reform was first proposed by the...
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