The Annual Scientific Conference on Sickle Cells and Thalassaemia is a leading global event for healthcare professionals. It offers a comprehensive overview of the latest advances in the diagnosis, treatment and emerging fields of haemoglobinopathies. Find out more...
On July 19, the kick-off meeting of the OrphaDev4Kids (OD4K) project was held in Bari, Italy. The OD4K is a 3-year project – coordinated by Consorzio per Valutazioni Biologiche e Farmacologiche (Italy) and involving 6 European Institutions – aiming to...
The Foundation announces the launch of a new 36-month project called HemaFAIR, funded under the European Commission’s Horizon Europe Twinning Bottom-Up programme (project No. 101159589). HemaFAIR, led by The Cyprus Institute of Neurology and Genetics, is...
The European Paediatric Translational Research Infrastructure (EPTRI) will hold its General Assembly and Scientific Meeting on 18 and 19 July in Bari, Italy. This key event will bring together researchers, industry representatives, healthcare professionals and patient...
Between 4 and 6 June 2024, 140 people from c4c beneficiaries met in Bergen, Norway, for the c4c General Assembly. This meeting was a great opportunity for colleagues to meet again and collaborate further for the benefit of the c4c network. The aim of this meeting was...
The final conference of the EJP RD (European Joint Programme on Rare Diseases) project was held in Bari, Italy, on 27 and 28 May 2024. More than 150 researchers, clinicians, patients, research funders and industry representatives joined the event sharing the most...
On March 4 and 5, the ERAMET project kick-off was held at university of Namur. This kick-off event brought together some forty participants at Namur’s Research Administration. ERAMET is a project funded to the tune of 6 million euros as part of the Horizon...
The conference “La salute nel tempo della malattia”, organised by APS Bottega del Sorriso, was held in Bari on April 13, 2024 at the IRCCS Istituto dei Tumori “Giovanni Paolo II” conference room. The event marked the conclusion of the project “Tumore ma non timore” in...
Coordinamento Thalassemici Regione Puglia is organising the conference “PUGLIA E THALASSEMIA – Consapevolezza, Conoscenza, Cura“ on Saturday 10 June 2023, at Hotel Hi in Bari, Italy. Coordinamento Thalassemici Regione Puglia is a second-level association consisting...
Today 28th February is the Rare Diseasy Day! Worldwide there are 300 million people living with a rare disease. Rare tumours are 20% of solid tumours. Their needs do not and cannot be ignored!
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