Fedele Bonifazi, President of the Gianni Benzi Foundation, was invited to take part to the 4th Annual Conference of the ELIXIR Czech National Node that was held on 11-12 November in Brno.
ELIXIR 4th Annual Conference
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Events
EJP on Rare Diseases Info Day and Brokerage Event
The field of rare disease is one of the main areas of interest of the Fondazione Gianni Benzi. The Foundation is member of the European Joint Programme on Rare Diseases (EJP RD) that aims to improve the research on Rare Diseases.
ARISE project meeting: advancing Sickle Cell Disease research
The second official ARISE Project Meeting was held in London on 24–25 October 2019. The meeting focused on the advancements in the ARISE project workplan, updates on secondments, outcomes achieved, and plans for future staff exchanges. Details regarding the location...
ARISE General Assembly
The official ARISE General Assembly was held at the premises of the Royal College of Pathologists, London, on 24-25 October 2019. The ARISE Consortium members met to discuss the progress of the project workplan, provided updates on the achievements of the secondments,...
Annual Sickle Cell Disease and Thalassaemia Conference
The Annual Scientific Conference on Sickle Cell and Thalassaemia (ASCAT) brought together consultants, specialist psychologists, nurses, scientists, and other experts in haemoglobinopathies in London from 21–23 October 2019. This must-attend event offered a chance to...
Summer school on rare disease registries and FAIRification of data
Registries were key resources for increasing timely and accurate diagnoses, improving patient management, tailoring treatments, facilitating clinical trials, supporting healthcare planning, and accelerating research. The International Summer School on Rare Disease...
7th European Association of Health Law (EAHL) Conference
Fondazione Gianni Benzi is partner of the 7th European Association of Health Law (EAHL) Conference“Innovation & Healthcare – New challenges for Europe”, under the patronage of the Council of Europe. In this context, the Foundation organises the...
University of Bari launches Biomis project on microbiota biobank
The Department of Biosciences, Biotechnologies and Biopharmaceutics of the University of Bari hosted the kick-off meeting of the Biomis project, which aimed at creating a biobank of intestinal microbiota and human saliva. After the welcome speech by Felice Ungaro...
Sickle Cell Disease: a meeting in Bari
Last March 4 the Gianni Benzi Foundation organized in Bari the conference Congenital Haemoglobinopathies: scientific updates and services organization for sickle cell disease.
Congenital hemoglobinopathies: scientific updates and organization of services for Sickle Cell Disease
Sickle Cell Disease (SCD) is a disease until a few decades ago almost unknown in our countries and today, as a result of migratory flows to Europe, is considered one of the most relevant hematological emergencies in the world. SCD is a serious disease having specific...
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