The in-person phase of the Open Academy x ERDERA School “Navigating rare disease research: data, ethics, and AI in Europe” took place on 14 and 15 September 2026 in Barcelona. This initiative, promoted by EURORDIS within ERDERA, offers patient advocates comprehensive,...
Fondazione per la Ricerca Farmacologica Gianni Benzi ETS, as partner of the European Rare Diseases Research Alliance (ERDERA), is co-organising the new ERDERA Ethics & Regulatory Webinar Series with the ERDERA training Work Stream . The series will examine ethical...
The joint monothematic conference of the Italian Society of Pharmacology (SIF), entitled “Shaping the Future of Pediatric Health: Innovative Research Approaches for Rare and Metabolic Diseases in Children”, took place on 23–24 February 2026 at the Palazzo Ateneo of...
Fondazione per la Ricerca Farmacologica Gianni Benzi, as a partner of the European project ERDERA (European Rare Disease Research Alliance), invites researchers, clinicians, data stewards, research support professionals and representatives of patient organisations to...
Fondazione Gianni Benzi joined in the 2nd ERDERA General Assembly 2025, held this year in Amsterdam and bringing together the European community committed to rare disease research. It was an important moment not only to review the outputs of the first year of the...
Fondazione Gianni Benzi took part in the World Orphan Drug Congress 2025, which once again gathered institutions, industry, researchers, regulators and patient organisations to address key challenges in the field of rare diseases. Viviana Giannuzzi, Head of the...
As part of the FAIR Training School 2025 – Advancing FAIR data practices for rare disease research, organised by ERDERA and hosted by the World Duchenne Organization, our researcher, Annalisa Landi, held a session on “Data Protection, Ethics and Regulatory Aspects”....
On 2–3 May 2025, Dr Silvia Torretta from Fondazione Gianni Benzi participated as a speaker in the Training Event on Paediatric Clinical Research for Young People Living with a Rare Disease, organised by the TEDDY Network within the framework of the ERDERA Project. The...
The European Rare Diseases Research Alliance (ERDERA) has officially launched the 2025 Joint Transnational Call for Proposals focused on “Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation”. This...
Fondazione Gianni Benzi is pleased to share the participation of our Head of Research and Innovation Department, Viviana Giannuzzi, at the World Orphan Drug Congress 2024, held in Barcelona from October 22-25. Viviana gave a lecture on the work done by Fondazione...