Sickle Cell Disease (SCD) is among the world’s most common serious inherited diseases with more than 300,000 annual births, particularly most of them are born in sub-Saharan Africa. The outcome of SCD in low-middle income countries is grim: less than 50% of affected births will survive beyond the 10th birthday.
The second official ARISE Project Meeting was held in London on 24–25 October 2019. The meeting focused on the advancements in the ARISE project workplan, updates on secondments, outcomes achieved, and plans for future staff exchanges. Details regarding the location...
The official ARISE General Assembly was held at the premises of the Royal College of Pathologists, London, on 24-25 October 2019. The ARISE Consortium members met to discuss the progress of the project workplan, provided updates on the achievements of the secondments,...
The Annual Scientific Conference on Sickle Cell and Thalassaemia (ASCAT) brought together consultants, specialist psychologists, nurses, scientists, and other experts in haemoglobinopathies in London from 21–23 October 2019. This must-attend event offered a chance to...
Want to know more about the ARISE project? Look at the interview to Fedele Bonifazi from Gianni Benzi Foundation, coordinator of the project together with the Guys and St. Thomas NHS Foundation Trust. Enjoy!
EMA has recommended granting a marketing authorisation in the EU for a genetically modified product for beta-thalassaemia, a rare inherited blood condition that causes severe anaemia.
The news related to the the conference Congenital Hemoglobinopaties: scientific updates and service organization for the sickle cell disease held in Bari last 4 March appeared on the following media: Le emoglobinopatie congenite: convegno a Bari Le emoglobinopatie...
The Gianni Benzi Foundation has contributed to a new paper on the challenges and opportunities of thalassemia registries, published on the Acta Inform Med magazine in March 2019.
Last March 4 the Gianni Benzi Foundation organized in Bari the conference Congenital Haemoglobinopathies: scientific updates and services organization for sickle cell disease.
The ARISE project has been officially presented in Bari last March 4, in the framework of the conference Congenital Hemoglobinopaties: scientific updates and service organization for the sickle cell disease, organized by the Gianni Benzi Foundation.
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