Let’s celebrate the World Sickle Cell Day 2023
Giornata mondiale anemia falciforme 2023
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emoglobinopatie
Giornata internazionale sulla talassemia 2023
May 8th, 2023 is the International Thalassaemia Day. The theme of the event this year is “BE AWARE.SHARE.CARE.: Strengthening Education to Bridge the Thalassaemia Care Gap”
Blood donations: a lifeline for thalassemia patients during covid19
A new initiative on blood transfusions and on the value of the blood donations was launched.
La serie di webinar ARISE continua: “Newborn SCD Screening”
The ARISE webinar series on Sickle Cell Disease continues. The webinar “Newborn Sickle Cell Disease Screening“ has been organised and it will be held on Wednesday 22nd July, 2020 at 05:00 PM (BST).
Webinar ARISE sulla transition care per la drepanocitosi
Lately, a set of webinars focused on Sickle Cell Disease have been organised within the ARISE project. A new one will be held on 24th June 2020 at 03:30 PM BST and will address the paediatric to adult transition care for patients with sickle cell disease.
COVID-19 e impatto sui pazienti con drepanocitosi in Nigeria
Aliyu Mande, health information officer at Ahmadu Bello Teaching Hospital, Zaria (Nigeria), replied to some questions about the COVID-19 management in his country with a focus on Sickle Cell Disease (SCD) patients. The interview is in the context of the FGB activities within the ARISE project.
Webinar sindrome infiammatoria pediatrica, covid e drepanocitosi
Do not miss the new webinar “Paediatric multisystem inflammatory syndrome temporally associated with COVID-19 and Sickle Cell Disease – what is the link?” organised within the ARISE project to be held on Monday 15th June at 06:00 PM CEST (05:00 PM UK time).
Seconda sessione webinar ARISE su COVID-19 e anemia falciforme
The second session of the webinar, to be held on Thursday 28th May, 2020 at 04:00 PM (UK time), will be the occasion to discuss with some relevant experts in the field to better understand the impact of COVID-19 on the SCD population, drawing conclusions from both the US and Lebanon. The emotional impact of the disease will be addressed as well.
Webinar ARISE: impatto del COVID-19 sull’anemia falciforme
In collaboration with the partners of the ARISE project that the Foundation coordinates, the webinar “COVID-19 and Sickle Cell Disease: the current scenario” has been organised. The first session of the webinar will be held on Tuesday 19th May, 2020 at 04:00 PM (UK time).
Covid: impatto sui pazienti con Talassemia e Drepanocitosi
COVID-19 pandemic is a health emergency involving all the world and the rare disease community is not excluded. Among the patients exposed to major risks, there are those treated with immunosuppressive drugs and those affected by respiratory diseases, but most of all those who have one or more complications affecting several organs and systems.
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