On the occasion of Rare Disease Day 2026, Fondazione Benzi is promoting a series of videos featuring members of its Scientific Committee and distinguished international experts, focusing on key issues in research, therapies and access to medicines. The series opens...
Rare Disease Day 2025 is celebrated on 28 February to raise awareness of the challenges faced by over 300 million people worldwide. Worldwide, 300 million people live with a rare disease. Fondazione Gianni Benzi has always been at the forefront of the fight against...
Today February 29th we celebrate Rare Disease Day 2024.
The meeting “I tumori rari: sfide ed opportunità” will be held on 23 February 2023 at the conference room at IRCCS Istituto Tumori “Giovanni Paolo II” in Bari
Today we celebrate Rare Disease Day and Fondazione Benzi is happy to support it also this year with the initiative “Share your voice: what it means to be rare”.
This year the Rare Disease Day was held on 29th February 2020, the rarest day of the year dedicated to raising awareness for the 300 million people living with a rare disease.
Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus supports the Rare Disease Day, the international day promoted by Eurordis to raise awareness about rare diseases and their impact on patients’ lives. On February 28th the organization all over the world share pi…
The “Rare Disease Day” campaign has reached its 9th edition this year, on February 29th, 2016, bringing once more, to public attention, the topic of rare diseases as a subject of medical, political and institutional concern. The initiative was founded by EURORDIS and...
A call to solidarity and to the acknowledgement of rare diseases as a real problem, not to be dismissed under the veil of indifference. Since its launch in 2008 as an European initiative, this campaign has been successfully trying to draw the attention of both society...
On February 28, 2014, the seventh edition of Rare Disease Day, themed “Join Together for Better Care,” took place. It was coordinated by EURORDIS (European Organisation for Rare Diseases) internationally, and by National Alliances and Patient Organisations...
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