The annual General Assembly and Consortium Meeting of the European Joint Programme on Rare Diseases – EJP RD was held in September 2022 in Porto, Portugal.
FGB at the EJP RD General Assembly and Consortium Meeting 2022
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Events
Rare disease research: innovative methodologies and digitalisation
The event “Metodologie innovative e digitalizzazione per la ricerca sulle malattie rare: esperienza e risultati nelle emoglobinopatie” will be held on 18 July 2022 at 8.30AM CEST in Bari (Italy), at the Regional Council of Apulia headquarters.
EPTRI at the European Biotech Week
The European Biotech Week 2021 will be held from September 27 until October 3. Fondazione Benzi will participate in the European Biotech Week, as partner of the European Paediatric Translational Research Infrastructure.
PedCRIN webinar series
PedCRIN is launching a webinar series to share some of the most interesting outcomes of the project. The first webinar will be held on April 7, 2021 at 1:00PM CEST and will be dedicated to the tools for managing paediatric trials.
PedCRIN final event
The PedCRIN final event “Fostering International Paediatric Clinical Research” will be held on Wednesday, June 16th 2021 at 9:30 – 13:00 CEST.
68th SIARV workshop
The Italian Society for Regulatory Activities, Access, and PharmacoVigilance – SIARV, organized the 68th SIARV workshop titled “Regulatory Tools in the New Post-Covid World,” which was held online on May 28, 2021, from 09:30 AM to 05:30 PM CEST. The course aimed to...
Fondazione Benzi at SIF National Congress
Fondazione Gianni Benzi took part in the 40° National Congress of the Italian Society of Pharmacology (SIF) “Il valore scientifico e l’uso appropriato del farmaco“, that run virtually from 9th to 13th March 2021.
Paediatric orphan medicines at Rare Disease Congress
Fondazione Benzi took part in the joint event including the RE(ACT) Congress – International Congress of Research on Rare and Orphan Diseases (6th edition) and IRDiRC – International Rare Diseases Research Consortium – Conference (4th edition) held online on 13-15 Janua…
EJP RD General Assembly: advancing rare disease research
The European Joint Program on Rare Diseases (EJP RD) was pleased to announce its second General Assembly (GA) and Consortium Meeting, which took place from 14 to 18 September 2020 online, due to the COVID-19 crisis at the time. The EJP RD brought together over 130...
EPTRI Open Meeting, April 2020
The EPTRI Open meeting was held on 2-3 April 2020. It was attended by more than 150 participants and was the occasion to present the project challenges and achievements reached so far. The meeting gave an interesting overview on the next steps and the scientif…
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