A new article published in BMC Medical Ethics sheds light on the main ethical and regulatory challenges affecting rare disease research across Europe, highlighting the importance of dedicated support frameworks to help researchers navigate complex compliance...
Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, giant cell arteritis) or multiple sclerosis? Are you interested in...
The final conference of the EJP RD (European Joint Programme on Rare Diseases) project was held in Bari, Italy, on 27 and 28 May 2024. More than 150 researchers, clinicians, patients, research funders and industry representatives joined the event sharing the most...
A new Massive Open Online Course (MOOC) on Health Data Ethics & Regulatory Frameworks in Rare Disease Research has been launched today! Developed as part of the European Joint Programme on Rare Diseases, in collaboration with the Rare Diseases Foundation, this...
A 3-day training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP RD partners. The training will be held in Rome, Italy on 13-15 March 2023.
The French Foundation for Rare Diseases has announced the opening of a new facilitation window of the Massive Open Online Course – MOOC From Lab to Clinic: Translational Research for Rare Diseases on October 9th
The EJP RD Joint Transnational Call, a funding opportunity for research projects, will be launched on December 12th.
The annual General Assembly and Consortium Meeting of the European Joint Programme on Rare Diseases – EJP RD was held in September 2022 in Porto, Portugal.
The European Joint Programme on Rare Diseases (EJP RD) is glad to announce that the last round for the Research Mobility Fellowships funding opportunity will open on October, 3rd, 2022.
EJP RD is glad to announce the opening of the call for Research Mobility Fellowships, which aims to support PhD students, postdocs and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence.
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