EJP RD

Join the paediatric expert group for youth

Join the paediatric expert group for youth

Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, giant cell arteritis) or multiple sclerosis? Are you interested in...

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EJP RD final conference: advancing rare disease research

EJP RD final conference: advancing rare disease research

The final conference of the EJP RD (European Joint Programme on Rare Diseases) project was held in Bari, Italy, on 27 and 28 May 2024. More than 150 researchers, clinicians, patients, research funders and industry representatives joined the event sharing the most...

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New MOOC on health data ethics in rare disease research

New MOOC on health data ethics in rare disease research

A new Massive Open Online Course (MOOC) on Health Data Ethics & Regulatory Frameworks in Rare Disease Research has been launched today! Developed as part of the European Joint Programme on Rare Diseases, in collaboration with the Rare Diseases Foundation, this...

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Training on strategies for undiagnosed rare disease cases

Training on strategies for undiagnosed rare disease cases

A 3-day training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP RD partners. The training will be held in Rome, Italy on 13-15 Ma…

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EJP RD opens call for research mobility fellowships

EJP RD opens call for research mobility fellowships

EJP RD is glad to announce the opening of the call for Research Mobility Fellowships, which aims to support PhD students, postdocs and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence…

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