On October 2nd, 2014, a meeting dedicated to the InNerMeD project was held in Castellaneta Marina (Italy). The initiative was part of the seventh edition of the Foresight Training Course, organised by Fondazione Gianni Benzi in the context of the European Projects Forum “Nex-t-work” (October 2-4, 2014), a forum aimed at networking and developing international relations with the various players of the EU grant-funded projects in order to share best practices.

The ‘Foresight Training Courses’ (FTCs) are short intensive courses devoted to create a critical mass of expertise in the different areas of Regulatory Sciences (medical devices, foods, medicinal products), with particular reference to the innovative advancement of the European Pharmaceutical and Biological products sectors.

The meeting was the occasion to present the InNerMeD-I-Network, its achievements and results and to disseminate and focus the attention of the audience on these rare diseases.

“InNerMeD-I-Network is the first European Network on Inherited NeuroMetabolic Diseases with the aim to create a multimedial network of information targeted on research, diagnosis and treatment of iNMDs” quoted Fedele Bonifazi, InNerMeD Project Manager and vice President of the Gianni Benzi Pharmacological Research Foundation, providing a general overview of the project objectives.

The importance of an accurate and timely diagnosis was underlined by Prof. Massimo Carella of the Laboratory of Medical Genetics at IRCCS Casa Sollievo della Sofferenza (San Giovanni Rotondo, Italy).

The meeting represented an excellent opportunity to present the InNerMeD-I-Network with the ultimate aim of enlarging the Network and ensuring that affected patients are given the priority they deserve and that their needs are met.

In that occasion, the project poster was distributed among all participants and exposed during the whole course.

The full programme of the InNerMeD meeting as well as the list of speakers are available here.

Here you can also download all the presentations of the speakers.

For further information on all the scientific events, please find here the link of the VII Foresight Training Course, that could be browsed even through mobile devices.