On the occasion of International Thalassaemia Day, celebrated every year on May 8th, Fondazione Gianni Benzi reaffirms its commitment to the fight against this genetic blood disease. Thalassaemia represents a major public health challenge, affecting thousands of...
We are glad to announce that the special issue “Personalized Medicine in Blood Disease of Children” of the Journal of Personalized Medicine has been published. This special issue includes a collection of seven articles focusing specifically on hemoglobinopathies,...
EMA recommended conditional approval of Casgevy, the first medicine using CRISPR/Cas9 gene-editing technology, for SCD and transfusion-dependent beta-thalassemia
The meeting “La Malattia Drepanocitica – nuove sfide e prospettive in Italia con le raccomandazioni della Commission di Lancet Haematology” will be held in Rome on 20 November 2023 at Sala Zuccari, Palazzo Giustiniani.
The Foundation announces the launch of a new four-year project, starting today, funded by the Cost programme, entitled HELIOS. The project aims to build a network of excellence to integrate, harmonise and disseminate existing knowledge on haemoglobinopathies,...
Let’s celebrate the World Sickle Cell Day 2023
Coordinamento Thalassemici Regione Puglia is organising the conference “PUGLIA AND THALASSEMIA – Consapevolezza, Conoscenza, Cura” to be held on 10 June 2023 at the Hotel Hi-Bari, Bari – Italy.
The platform for healthcare professionals and patients with thalassaemia and sickle cell disease, called TIFLIX (Thalassaemia International Federation LIbrary eXtended) is now available!
Coordinamento Thalassemici Regione Puglia is organising the conference “PUGLIA E THALASSEMIA – Consapevolezza, Conoscenza, Cura“ on Saturday 10 June 2023, at Hotel Hi in Bari, Italy. Coordinamento Thalassemici Regione Puglia is a second-level association consisting of...
May 8th, 2023 is the International Thalassaemia Day. The theme of the event this year is “BE AWARE.SHARE.CARE.: Strengthening Education to Bridge the Thalassaemia Care Gap”
Recent posts in News