c4c will host an international symposium, a two-day event this November on the 13th and 14th in Amsterdam, for invited stakeholders to share the achievements and results of the project, including the start-up of the not for profit, c4c-S (conect4children Stichting), that continues outside of the c4c consortium. The event will feature presentations on the results from […]

Fondazione Gianni Benzi is pleased to share the participation of our Head of Research and Innovation Department,  Viviana Giannuzzi, at the World Orphan Drug Congress 2024, held in Barcelona from October 22-25. Viviana gave a lecture on the work done by Fondazione Benzi in collaboration with the coordinator, the Ethics Advisor team and other partners […]

On 28 and 29 October 2024, Fondazione Gianni Benzi’s President Fedele Bonifazi and Viviana Giannuzzi, Head of Research and Innovation Department, participated in the kick-off meeting of the ERDERA project. This event marked the beginning of a new era in rare disease research, with over 600 people attending either online or in person in Paris. […]

Fondazione Gianni Benzi took part in the second edition of the Summer School ‘PREPARA – Paediatric peRsonalised ExtemPorAneous foRmulAtions’, an event organised by the Hospital Pharmacy School of the University of Bari ‘Aldo Moro’, in collaboration with Farmalabor srl and EPTRI. The summer school, of great relevance in the field of paediatric pharmaceutics, brought together experts […]

The Annual Scientific Conference on Sickle Cells and Thalassaemia is a leading global event for healthcare professionals. It offers a comprehensive overview of the latest advances in the diagnosis, treatment and emerging fields of haemoglobinopathies. Find out more about the 19th edition by clicking here.

On July 19, the kick-off meeting of the OrphaDev4Kids (OD4K) project was held in Bari, Italy. The OD4K is a 3-year project – coordinated by Consorzio per Valutazioni Biologiche e Farmacologiche (Italy) and involving 6 European Institutions – aiming to create an ecosystem that facilitates the bringing together of skills, knowledge, research ideas and financial […]

The Foundation announces the launch of a new 36-month project called HemaFAIR, funded under the European Commission’s Horizon Europe Twinning Bottom-Up programme (project No. 101159589). HemaFAIR, led by The Cyprus Institute of Neurology and Genetics, is conducted in collaboration with Vall d’Hebron University Hospital (Spain), Amsterdam University Medical Center and Leiden University Medical Center (The […]

The European Paediatric Translational Research Infrastructure (EPTRI) will hold its General Assembly and Scientific Meeting on 18 and 19 July in Bari, Italy. This key event will bring together researchers, industry representatives, healthcare professionals and patient advocacy groups to discuss the latest advances in paediatric research and how EPTRI can provide support through its specialised […]

Between 4 and 6 June 2024, 140 people from c4c beneficiaries met in Bergen, Norway, for the c4c General Assembly. This meeting was a great opportunity for colleagues to meet again and collaborate further for the benefit of the c4c network. The aim of this meeting was to provide an update on progress to date […]

The final conference of the EJP RD (European Joint Programme on Rare Diseases) project was held in Bari, Italy, on 27 and 28 May 2024. More than 150 researchers, clinicians, patients, research funders and industry representatives joined the event sharing the most updated novelties coming from rare disease research and the project outputs offered to […]