As part of the FAIR Training School 2025 – Advancing FAIR data practices for rare disease research, organised by ERDERA and hosted by the World Duchenne Organization, our researcher, Annalisa Landi, held a session on “Data Protection, Ethics and Regulatory Aspects”. She focused her contribution on the key aspects of personal data protection, ethics, and […]

Fondazione Gianni Benzi participated in the COST Connect – Gender Equality Plans in COST Actions event, held in Brussels on 13 May 2025. The initiative, organised by COST (European Cooperation in Science and Technology), represented an important opportunity for dialogue among COST Actions members committed to promoting gender equality in research and innovation. The Foundation […]

On 12-15 May 2025, Fondazione Gianni Benzi participated in the FAIR Principles Training School organised by HemaFAIR in collaboration with the HELIOS Network in Larnaca, Cyprus.   Participants had the opportunity to explore how research data can be made Findable, Accessible, Interoperable, and Reusable (FAIR), not only in theory but also in practice, through in-depth lectures, […]

On 2–3 May 2025, Dr Silvia Torretta from Fondazione Gianni Benzi participated as a speaker in the Training Event on Paediatric Clinical Research for Young People Living with a Rare Disease, organised by the TEDDY Network within the framework of the ERDERA Project. The training was aimed at raising awareness among young patient advocates about […]

Fondazione Gianni Benzi recently participated the Final Project Meeting of the conect4children (c4c) initiative in Venice, Italy. The event took place on 1–2 April 2025 at Scuola Grande San Giovanni Evangelista, a historical venue. Importantly, this meeting marked the conclusion of the c4c project, active in paediatric clinical trials across Europe. Over two days, the […]

On 31 March and 1 April, the ERAMET consortium was involved in a face-to-face meeting hosted by Warwick University (Coventry, UK). After one year from the project kick-off, a year full of collaboration and hard work to set up all project activities, consortium partners gathered to reflect on the first-year achievements and strategies for the upcoming months. Dr Silvia Torretta represented our […]

The EPTRI General Assembly and Scientific Meeting took place in Bologna from 13 to 15 March 2025. Fondazione Gianni Benzi actively participated. Fedele Bonifazi, Viviana Giannuzzi and Franco Bartoloni contributed with key scientific presentations. Fedele Bonifazi spoke on “EPTRI Centralised Services and the OrphaDev4Kids project”. He presented EPTRI’s centralised services with a focus on those […]

From 14 to 15 November 2024, our Head of the Research and Innovation Department Viviana Giannuzzi actively participated in the Annual Consortium Meeting of the INVENTS project in Göttingen, Germany. Hosted by Tim Friede’s team from Universitätsmedizin Göttingen, the two-day event gathered consortium members to discuss on the first project’s achievements and plan for future […]

Fondazione Gianni Benzi participated in the 42nd Congress of the Italian Society of Pharmacology (SIF), held in Sorrento from 13 to 16 November 2024, focused on the theme “Science Today for a Better Medicine Tomorrow”. The event featured a rich program of plenary lectures, workshops, and poster presentations, fostering collaboration among researchers, clinicians, and industry […]

On 2 and 3 November 2024, the first face-to-face meeting of the INVENTS Paediatric Patient Expert Group (PEG) titled “Innovative methodologies based on in silico models and the secondary use of health data” was held in Bari. Under the European INVENTS project, TEDDY network, partner of the project, has established a PEG to support the […]