ECRIN participated in the 2018 KoNECT-MFDS International Conference in Seoul, Korea, from October 31st to November 2nd. ECRIN’s Director General, Jacques Demotes, gave a talk on “Rare diseases and paediatric clinical research networks in Europe”.


ECRIN participated in the 2018 KoNECT-MFDS International Conference in Seoul, Korea, from October 31st to November 2nd. ECRIN’s Director General, Jacques Demotes, gave a talk on “Rare diseases and paediatric clinical research networks in Europe”.

Laura Mangiarini (PENTA) and Carla Owen (ULIV),presented c4c in last Corbel Medical Infrastructure-Users Forum, held in Paris 15th October 2018. The Forum is designed to promote close collaboration, at the pan-EU level, between medical research communities, funding bodies, and medical research infrastructures.

c4c (conect4children) is a 6-years EU project setting up a large collaborative paediatric network that will facilitate the development of new drugs and other therapies for the entire paediatric population in Europe. 33 academic and 10 industry partners, more than 50...

The European Commission’s DG Research and Innovation considers DEEP project as an excellent example of fruitful project, working on the integration of the existing information on deferiprone use in paediatric patients, and providing a valid support to the use of the drug in this class of age.

The conect4children (collaborative network for European clinical trials for children, (c4c) consortium aims to enhance the competitiveness of Europe as a critical region for developing medicines for children by using existing expertise, patient access and developing common processes to be applied to disease natural history studies, registries, studies of new therapies and comparisons of existing therapies.

April 18, 2018 is the deadline for application to the EJP Cofund for Rare Diseases, the call of EJP Cofund aimed at creating a R&I pipeline “from bench to bedside” ensuring rapid translation of research results into clinical applications and uptake in healthcare for the benefit of patients.

On May 16th, 2015, the city of Bucharest (Romania) hosted the second edition of the European Projects Forum Nextwork, a 2-day meeting aimed at providing methodology and skills to be successful in the complex world of education and research as well as European project...
The TEDDY Network meeting was held in Bari (Italy) on 9th of January 2015. TEDDY is an independent multidisciplinary, multinational Network composed of partners from 15 countries aimed at facilitating the performance of good quality paediatric studies and research....

The fourth issue of the newsletter pertaining to DEEP-2 clinical trial, one of the three studies at the bottom of the DEEP Project (DEferiprone Evaluation in Paediatrics) was published on January 7th, 2015. This Newsletter highlights the main progresses achieved in...

On October 2nd, 2014, a meeting dedicated to the InNerMeD project was held in Castellaneta Marina (Italy). The initiative was part of the seventh edition of the Foresight Training Course, organised by Fondazione Gianni Benzi in the context of the European Projects...
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