c4c will host an international symposium, a two-day event this November on the 13th and 14th in Amsterdam, for invited stakeholders to share the achievements and results of the project, including the start-up of the not for profit, c4c-S (conect4children Stichting),...
On 28 and 29 October 2024, Fondazione Gianni Benzi’s President Fedele Bonifazi and Viviana Giannuzzi, Head of Research and Innovation Department, participated in the kick-off meeting of the ERDERA project . This event marked the beginning of a new era in rare disease...
Fondazione Gianni Benzi is pleased to invite you to follow the HELIOS webinar series, an initiative for which it provides organisational support as a member of the project’s communication and dissemination team. Each month renowned experts will present the...
A new collaborative national project involving the Foundation has been recently funded and has just started. It is coordinated by Istituto Ortopedico Rizzoli and involves three other partners in Italy, ie. Gianni Benzi Foundation, Azienda Ospedaliera Ospedali Riuniti...
Building on the successful experience gained from the European Joint Programme on Rare Diseases (EJPRD) project, the Foundation is preparing to begin a new 7-year project, started on September 1, 2024, funded under the Horizon Europe Framework Programme, The European...
Between 4 and 6 June 2024, 140 people from c4c beneficiaries met in Bergen, Norway, for the c4c General Assembly. This meeting was a great opportunity for colleagues to meet again and collaborate further for the benefit of the c4c network. The aim of this meeting was...
Are you an adolescent aged from 12 to 18 living with arthritis (including rare juvenile idiopathic arthritis, polyarticular juvenile idiopathic arthritis, systemic juvenile idiopathic arthritis, giant cell arteritis) or multiple sclerosis? Are you interested in...
The final conference of the EJP RD (European Joint Programme on Rare Diseases) project was held in Bari, Italy, on 27 and 28 May 2024. More than 150 researchers, clinicians, patients, research funders and industry representatives joined the event sharing the most...
A new Massive Open Online Course (MOOC) on Health Data Ethics & Regulatory Frameworks in Rare Disease Research has been launched today! Developed as part of the European Joint Programme on Rare Diseases, in collaboration with the Rare Diseases Foundation, this...
The Foundation has recently started a new 4-year project, starting on January 1, 2024, funded under the Horizon Europe Framework Programme, titled ERAMET. Its kick-off meeting was held in Namur, Belgium, on March 5-6. The project aims to enhance decision-making and...
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