The report, presented last July 19 in Rome, has been realized by Federazione Italiana Malattie Rare onlus, with the cooperation of the Italian Ministry of Health and represents a detailed overview of the rare disease patients condition in Italy.
On June 8, Viviana Giannuzzi, head of the Research Department and coordinator of the Scientific Committee of Fondazione per la Ricerca Farmacologica Gianni Benzi Onlus, had a speech in the framework of AFI Symposium in Rimini, one of the italian biggest events focused on the novelties and changes of the drug industry due to the widespread application of digital technologies.
The 2017 EMA annual report has been published. The report contains key figures, including core statistics that highlight the main outcomes of the Agency’s regulatory procedures and activities, as well as interesting trends and changes observed in recent years.
A new collaboration enriches the partnership of the Gianni Benzi Foundation. After the recent adhesion to Enerca, the European network for rare and congenital anemia, the Foundation has become part of Ricerc@, the Italian Network of Ethics Committees, Researchers and...
The coordinator of our Scientific Committee, Viviana Giannuzzi, will represent the Benzi Foundation at ECRD2018, the 9th European Conference on rare diseases & orphan products that will be held in May 10-12 in Vienna. "Rare Diseases 360 ° - Collaborative...
EMA – European Medicines Agency has recently published a question-and-answer document useful to erase doubts related to the meaning of orphan designation and other aspects related to orphan medicines. The EU legislation foresees giving orphan designation for...
Fondazione Gianni Benzi is happy to announce its involvement in ENERCA, the European Network for Rare and Congenital Aenemias funded by the EU Commission aimed at offering an improved public health service to professional medical practitioners and patients in every...
We invite you to support Fondazione Gianni Benzi through the donation of your 5 x 1000 of the income tax, by entering the tax code 93347800729 in the relevant box of the income tax return dedicated to the allocation of 5 x 1000 of IRPEF, under the item “funding of...
Access to the drug and reimbursement: a two-speed Europe? We talked about it to Dr. Enrico Bosone, president of SIAR (Italian Society for Regulatory Activities), a non-profit organization whose membership comprises about 200 professionals in Italy involved in...
Although 2013 data about clinical trials showed Italy, compared to Europe, stay stable, 2014 data show a slight upward trend. In particular, clinical trials in the starting phase of drugs development (I and II phase) are the majority. Clinical trials about advanced...
Recent posts in News