On 27–28 July 2026, Fondazione per la Ricerca Farmacologica Gianni Benzi participated in the OrphaDev4Kids General Assembly, hosted by the Children’s Memorial Health Institute (IPCZD) in Warsaw, Poland. The meeting brought together all consortium partners to review the project’s progress at the end of its second year, discuss the results achieved so far and define […]

ETHICS, GENDER, REGULATION AND USE OF DATA An interdisciplinary training school for inclusive research and responsible use of data in haemoglobinopathies  1 – 3 July 2026 Department of Computer Science – University of Bari Aldo Moro | Bari The 18th edition of the Foresight Training Course was held within the framework of the HELIOS Action– […]

From 11 to 14 May 2026, the Federated Learning Hackathon took place in Cyprus. The initiative, organised within the framework of the HemaFAIR project, focused on federated learning, federated health data analysis, and Ontology-Based Data Access.  Fondazione Gianni Benzi actively contributed to the event with a dedicated lecture on “Privacy, Ethics, and Responsible Research”, delivered by our researcher Annalisa Landi. The presentation addressed the key privacy issues and ethical challenges of federated ecosystems applied to […]

The annual meeting of the European project ERAMET took place on April 15–16, 2026, in Catania. The event marked a key milestone to review the progress achieved during the first year of activities and to define the next steps of the project, bringing together academic, institutional, and industrial partners from across Europe. The first day […]

The joint monothematic conference of the Italian Society of Pharmacology (SIF), entitled “Shaping the Future of Pediatric Health: Innovative Research Approaches for Rare and Metabolic Diseases in Children”, took place on 23–24 February 2026 at the Palazzo Ateneo of the University of Bari Aldo Moro. The event brought together leading national and international experts in […]

On 6 February 2026, the Gender Equality in the EU webinar took place. The event was organised within the HemaFAIR project in collaboration with HELIOS Cost Action. The webinar was delivered by Annalisa Landi, researcher at Fondazione Gianni Benzi and Ethics, Gender Equality & Diversity Coordinator at HELIOS. In her presentation, Annalisa outlined the main […]

Fondazione Gianni Benzi took part, from 4 to 7 November 2025, in the EP PerMed Implementation School on Personalised Medicine – Data-driven Research and Implementation, held in Zaragoza at the CIBA – Aragon Health Sciences Institute. The School, organised by the EP PerMed partners with the support of DLR Projektträger, aimed to strengthen the skills […]

Fondazione Gianni Benzi joined in the 2nd ERDERA General Assembly 2025, held this year in Amsterdam and bringing together the European community committed to rare disease research. It was an important moment not only to review the outputs of the first year of the project, but also to contribute to the discussions that will shape […]

Fondazione Gianni Benzi took part in the World Orphan Drug Congress 2025, which once again gathered institutions, industry, researchers, regulators and patient organisations to address key challenges in the field of rare diseases. Viviana Giannuzzi, Head of the Research and Innovation Department, contributed to the programme with several interventions focused on regulatory aspects and research […]

Fondazione Gianni Benzi took part in the 20th edition of the Annual Sickle Cell & Thalassaemia Conference (ASCAT), which took place in London from 1 to 4 October 2025. This major international event, organised in collaboration with the European Hematology Association and the British Society of Haematology, is a key platform for global scientific exchange […]