From 11 to 14 May 2026, the Federated Learning Hackathon took place in Cyprus. The initiative, organised within the framework of the HemaFAIR project, focused on federated learning, federated health data analysis, and Ontology-Based Data Access. Fondazione Gianni...
A new collaborative national project involving the Foundation has been recently funded and has just started. It is coordinated by Istituto Ortopedico Rizzoli and involves three other partners in Italy, ie. Gianni Benzi Foundation, Azienda Ospedaliera Ospedali Riuniti...
The Foundation announces the launch of a new 36-month project called HemaFAIR, funded under the European Commission's Horizon Europe Twinning Bottom-Up programme (project No. 101159589). HemaFAIR, led by The Cyprus Institute of Neurology and Genetics, is conducted in...
As part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of Data is a 5-day training programme organised by Istituto Superiore di Sanità (ISS) in close collaboration with EJP-RD task partners
The FAIRopoly has been launched on the EJP RD website
In order to support and accelerate the research, data should be shared and disseminated, but at the same time the privacy right of the subjects should be safeguarded, considering data protection obligations.
Registries were key resources for increasing timely and accurate diagnoses, improving patient management, tailoring treatments, facilitating clinical trials, supporting healthcare planning, and accelerating research. The International Summer School on Rare Disease...
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