The Committee on Public Health (SANT) has launched a public consultation to gain a deeper understanding of the challenges faced by people living with rare diseases and to gather insights from those working in or involved with this field.

Taking part is crucial as experiences, ideas, and suggestions provided will help shape the Committee’s future work on rare diseases and contribute to better policies and support.

This survey is voluntary and anonymous and is open for one month starting from February to March.

Take part in the public consultation now!