{"id":4670,"date":"2015-02-25T09:02:57","date_gmt":"2015-02-25T09:02:57","guid":{"rendered":"https:\/\/benzifoundation.org\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/"},"modified":"2015-02-25T09:02:57","modified_gmt":"2015-02-25T09:02:57","slug":"rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare","status":"publish","type":"post","link":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/","title":{"rendered":"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare"},"content":{"rendered":"

Un appello alla solidariet\u00e0 e al riconoscimento delle malattie rare come un problema reale, da non relegare sotto il velo dell\u2019indifferenza.<\/p>\n

Fin dal suo lancio nel 2008 come iniziativa europea, la campagna ha cercato con successo di attirare l\u2019attenzione della societ\u00e0 e dei singoli individui, dei governi nazionali e delle istituzioni sul tema delle malattie rare, con l\u2019obiettivo di intensificare le politiche nazionali in materia e di innalzare gli standard istituzionali nella gestione delle sfide che tali patologie comportano.<\/p>\n

La giornata delle malattie rare non si limita a fare appello alla coscienza delle persone o alle risorse degli Stati, ma promuove anche strategie comuni nella ricerca e nell\u2019assistenza sanitaria, che possano condurre a soluzioni condivise per problematiche simili tra diverse malattie rare, nella speranza di migliorare i trattamenti e la qualit\u00e0 della vita delle persone colpite.<\/p>\n

La Fondazione Gianni Benzi \u00e8 onorata di essere parte originaria di questa iniziativa mondiale, partecipando anche in qualit\u00e0 di partner nel progetto InNerMeD-I-Network<\/a> (Inherited NeuRoMetabolic Diseases Information Network), che mira a creare una rete informativa dedicata alla ricerca, diagnosi e trattamento delle malattie neurometaboliche ereditarie (iNMDs), rivolta a pazienti e famiglie.<\/p>\n

La Fondazione Gianni Benzi aderisce all\u2019iniziativa diventando friend of Rare Disease Day e manifestando il proprio sostegno attraverso il sito ufficiale<\/a>.<\/p>\n

Per ulteriori informazioni, visita il sito ufficiale<\/a> di Rare Disease Day: www.rarediseaseday.org.<\/p>\n","protected":false},"excerpt":{"rendered":"

Un appello alla solidariet\u00e0 e al riconoscimento delle malattie rare come un problema reale, da non relegare sotto il velo dell\u2019indifferenza. Fin dal suo lancio nel 2008 come iniziativa europea, la campagna ha cercato con successo di attirare l\u2019attenzione della societ\u00e0 e dei singoli individui, dei governi nazionali e delle istituzioni sul tema delle malattie […]<\/p>\n","protected":false},"author":1,"featured_media":4664,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[215],"tags":[223,216],"class_list":["post-4670","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-diseases","tag-malattie-rare","tag-rare-disease-day"],"yoast_head":"\nRare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare - Fondazione Gianni Benzi - ETS<\/title>\n<meta name=\"description\" content=\"Rare Disease Day raises awareness about rare diseases, encouraging solidarity, research, and improved healthcare.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare - Fondazione Gianni Benzi - ETS\" \/>\n<meta property=\"og:description\" content=\"Rare Disease Day raises awareness about rare diseases, encouraging solidarity, research, and improved healthcare.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/\" \/>\n<meta property=\"og:site_name\" content=\"Fondazione Gianni Benzi - ETS\" \/>\n<meta property=\"article:published_time\" content=\"2015-02-25T09:02:57+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/RareDiseaseDay.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1440\" \/>\n\t<meta property=\"og:image:height\" content=\"749\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Scritto da\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tempo di lettura stimato\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#\\\/schema\\\/person\\\/b927dbd45f2d82849380299ff732c266\"},\"headline\":\"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare\",\"datePublished\":\"2015-02-25T09:02:57+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/\"},\"wordCount\":239,\"commentCount\":0,\"image\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/benzifoundation.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/RareDiseaseDay.jpg\",\"keywords\":[\"malattie rare\",\"rare disease day\"],\"articleSection\":[\"Rare diseases\"],\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/\",\"url\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/\",\"name\":\"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare - Fondazione Gianni Benzi - ETS\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/benzifoundation.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/RareDiseaseDay.jpg\",\"datePublished\":\"2015-02-25T09:02:57+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#\\\/schema\\\/person\\\/b927dbd45f2d82849380299ff732c266\"},\"description\":\"Rare Disease Day raises awareness about rare diseases, encouraging solidarity, research, and improved healthcare.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/#breadcrumb\"},\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/#primaryimage\",\"url\":\"https:\\\/\\\/benzifoundation.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/RareDiseaseDay.jpg\",\"contentUrl\":\"https:\\\/\\\/benzifoundation.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/RareDiseaseDay.jpg\",\"width\":1440,\"height\":749},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#website\",\"url\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/\",\"name\":\"Fondazione Gianni Benzi - ETS\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"it-IT\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#\\\/schema\\\/person\\\/b927dbd45f2d82849380299ff732c266\",\"name\":\"admin\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g\",\"caption\":\"admin\"},\"sameAs\":[\"https:\\\/\\\/benzifoundation.org\"],\"url\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare - Fondazione Gianni Benzi - ETS","description":"Rare Disease Day raises awareness about rare diseases, encouraging solidarity, research, and improved healthcare.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/","og_locale":"it_IT","og_type":"article","og_title":"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare - Fondazione Gianni Benzi - ETS","og_description":"Rare Disease Day raises awareness about rare diseases, encouraging solidarity, research, and improved healthcare.","og_url":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/","og_site_name":"Fondazione Gianni Benzi - ETS","article_published_time":"2015-02-25T09:02:57+00:00","og_image":[{"width":1440,"height":749,"url":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/RareDiseaseDay.jpg","type":"image\/jpeg"}],"author":"admin","twitter_card":"summary_large_image","twitter_misc":{"Scritto da":"admin","Tempo di lettura stimato":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/#article","isPartOf":{"@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/"},"author":{"name":"admin","@id":"https:\/\/benzifoundation.org\/it\/#\/schema\/person\/b927dbd45f2d82849380299ff732c266"},"headline":"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare","datePublished":"2015-02-25T09:02:57+00:00","mainEntityOfPage":{"@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/"},"wordCount":239,"commentCount":0,"image":{"@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/#primaryimage"},"thumbnailUrl":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/RareDiseaseDay.jpg","keywords":["malattie rare","rare disease day"],"articleSection":["Rare diseases"],"inLanguage":"it-IT","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/","url":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/","name":"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare - Fondazione Gianni Benzi - ETS","isPartOf":{"@id":"https:\/\/benzifoundation.org\/it\/#website"},"primaryImageOfPage":{"@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/#primaryimage"},"image":{"@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/#primaryimage"},"thumbnailUrl":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/RareDiseaseDay.jpg","datePublished":"2015-02-25T09:02:57+00:00","author":{"@id":"https:\/\/benzifoundation.org\/it\/#\/schema\/person\/b927dbd45f2d82849380299ff732c266"},"description":"Rare Disease Day raises awareness about rare diseases, encouraging solidarity, research, and improved healthcare.","breadcrumb":{"@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/#breadcrumb"},"inLanguage":"it-IT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/"]}]},{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/#primaryimage","url":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/RareDiseaseDay.jpg","contentUrl":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/RareDiseaseDay.jpg","width":1440,"height":749},{"@type":"BreadcrumbList","@id":"https:\/\/benzifoundation.org\/it\/rare-disease-day-un-appello-alla-solidarieta-e-allazione-per-le-malattie-rare\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/benzifoundation.org\/it\/"},{"@type":"ListItem","position":2,"name":"Rare Disease Day: un appello alla solidariet\u00e0 e all\u2019azione per le malattie rare"}]},{"@type":"WebSite","@id":"https:\/\/benzifoundation.org\/it\/#website","url":"https:\/\/benzifoundation.org\/it\/","name":"Fondazione Gianni Benzi - ETS","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/benzifoundation.org\/it\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"it-IT"},{"@type":"Person","@id":"https:\/\/benzifoundation.org\/it\/#\/schema\/person\/b927dbd45f2d82849380299ff732c266","name":"admin","image":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/secure.gravatar.com\/avatar\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g","caption":"admin"},"sameAs":["https:\/\/benzifoundation.org"],"url":"https:\/\/benzifoundation.org\/it\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/posts\/4670","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/comments?post=4670"}],"version-history":[{"count":0,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/posts\/4670\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/media\/4664"}],"wp:attachment":[{"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/media?parent=4670"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/categories?post=4670"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/tags?post=4670"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}