{"id":4621,"date":"2024-04-15T09:07:14","date_gmt":"2024-04-15T09:07:14","guid":{"rendered":"https:\/\/benzifoundation.org\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/"},"modified":"2024-04-15T09:07:14","modified_gmt":"2024-04-15T09:07:14","slug":"conect4children-standardizzazione-dati-pediatrici-per-malattie-rare","status":"publish","type":"post","link":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/","title":{"rendered":"conect4children: standardizzazione dati pediatrici per malattie rare"},"content":{"rendered":"<p>L\u2019articolo \u201c<strong>Learning from conect4children: A Collaborative Approach towards Standardisation of Disease-Specific Paediatric Research Data<\/strong>\u201d \u00e8 stato pubblicato sulla rivista MDPI l\u20198 Aprile 2024.<br \/>\nQuesto lavoro \u00e8 nato nell\u2019ambito del p<a href=\"https:\/\/conect4children.org\/\" target=\"_blank\" rel=\"noopener\">rogetto conect4children<\/a>, istituito per facilitare lo sviluppo di nuovi farmaci e altre terapie per i pazienti pediatrici e di cui la Fondazione Gianni Benzi onlus \u00e8 partner.<br \/>\nIl lavoro pone l\u2019attenzione sul fatto che non ci sono abbastanza farmaci testati per tutte le et\u00e0 rilevanti della popolazione pediatrica. Per ovviare a questo problema, \u00e8 fondamentale che i dati clinici provenienti da fonti diverse siano interoperabili e possano essere messi in comune per studi pi\u00f9 ampi. Nel contributo vengono quindi ripercorsi i vari passi compiuti da conect4children nella standardizzazione e la condivisione dei dati pediatrici, soprattutto nel campo delle malattie rare.<br \/>\nL\u2019articolo \u00e8 disponibile gratuitamente <a href=\"https:\/\/www.mdpi.com\/2306-5729\/9\/4\/55\" target=\"_blank\" rel=\"noopener\">qui<\/a>.  <\/p>\n","protected":false},"excerpt":{"rendered":"<p>L\u2019articolo \u201cLearning from conect4children: A Collaborative Approach towards Standardisation of Disease-Specific Paediatric Research Data\u201d \u00e8 stato pubblicato sulla rivista MDPI l\u20198 Aprile 2024. Questo lavoro \u00e8 nato nell\u2019ambito del progetto conect4children, istituito per facilitare lo sviluppo di nuovi farmaci e altre terapie per i pazienti pediatrici e di cui la Fondazione Gianni Benzi onlus \u00e8 [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":4620,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[224,209],"tags":[229],"class_list":["post-4621","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aggiornamenti-dai-progetti","category-conect4children","tag-paediatric-research"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>conect4children: standardizzazione dati pediatrici per malattie rare - Fondazione Gianni Benzi - ETS<\/title>\n<meta name=\"description\" content=\"conect4children drives paediatric data standardisation and sharing, enhancing medicine testing for children.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"conect4children: standardizzazione dati pediatrici per malattie rare - Fondazione Gianni Benzi - ETS\" \/>\n<meta property=\"og:description\" content=\"conect4children drives paediatric data standardisation and sharing, enhancing medicine testing for children.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/\" \/>\n<meta property=\"og:site_name\" content=\"Fondazione Gianni Benzi - ETS\" \/>\n<meta property=\"article:published_time\" content=\"2024-04-15T09:07:14+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/dimensioni-ottimali-per-wordpress.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"1000\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Scritto da\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tempo di lettura stimato\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#\\\/schema\\\/person\\\/b927dbd45f2d82849380299ff732c266\"},\"headline\":\"conect4children: standardizzazione dati pediatrici per malattie rare\",\"datePublished\":\"2024-04-15T09:07:14+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/\"},\"wordCount\":143,\"commentCount\":0,\"image\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/benzifoundation.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/dimensioni-ottimali-per-wordpress.jpg\",\"keywords\":[\"paediatric research\"],\"articleSection\":[\"Aggiornamenti dai progetti\",\"conect4children\"],\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/\",\"url\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/\",\"name\":\"conect4children: standardizzazione dati pediatrici per malattie rare - Fondazione Gianni Benzi - ETS\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/benzifoundation.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/dimensioni-ottimali-per-wordpress.jpg\",\"datePublished\":\"2024-04-15T09:07:14+00:00\",\"author\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#\\\/schema\\\/person\\\/b927dbd45f2d82849380299ff732c266\"},\"description\":\"conect4children drives paediatric data standardisation and sharing, enhancing medicine testing for children.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/#breadcrumb\"},\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/#primaryimage\",\"url\":\"https:\\\/\\\/benzifoundation.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/dimensioni-ottimali-per-wordpress.jpg\",\"contentUrl\":\"https:\\\/\\\/benzifoundation.org\\\/wp-content\\\/uploads\\\/2026\\\/01\\\/dimensioni-ottimali-per-wordpress.jpg\",\"width\":1200,\"height\":1000},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"conect4children: standardizzazione dati pediatrici per malattie rare\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#website\",\"url\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/\",\"name\":\"Fondazione Gianni Benzi - ETS\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"it-IT\"},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/#\\\/schema\\\/person\\\/b927dbd45f2d82849380299ff732c266\",\"name\":\"admin\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"it-IT\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g\",\"caption\":\"admin\"},\"sameAs\":[\"https:\\\/\\\/benzifoundation.org\"],\"url\":\"https:\\\/\\\/benzifoundation.org\\\/it\\\/author\\\/admin\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"conect4children: standardizzazione dati pediatrici per malattie rare - Fondazione Gianni Benzi - ETS","description":"conect4children drives paediatric data standardisation and sharing, enhancing medicine testing for children.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/","og_locale":"it_IT","og_type":"article","og_title":"conect4children: standardizzazione dati pediatrici per malattie rare - Fondazione Gianni Benzi - ETS","og_description":"conect4children drives paediatric data standardisation and sharing, enhancing medicine testing for children.","og_url":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/","og_site_name":"Fondazione Gianni Benzi - ETS","article_published_time":"2024-04-15T09:07:14+00:00","og_image":[{"width":1200,"height":1000,"url":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/dimensioni-ottimali-per-wordpress.jpg","type":"image\/jpeg"}],"author":"admin","twitter_card":"summary_large_image","twitter_misc":{"Scritto da":"admin","Tempo di lettura stimato":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/#article","isPartOf":{"@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/"},"author":{"name":"admin","@id":"https:\/\/benzifoundation.org\/it\/#\/schema\/person\/b927dbd45f2d82849380299ff732c266"},"headline":"conect4children: standardizzazione dati pediatrici per malattie rare","datePublished":"2024-04-15T09:07:14+00:00","mainEntityOfPage":{"@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/"},"wordCount":143,"commentCount":0,"image":{"@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/#primaryimage"},"thumbnailUrl":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/dimensioni-ottimali-per-wordpress.jpg","keywords":["paediatric research"],"articleSection":["Aggiornamenti dai progetti","conect4children"],"inLanguage":"it-IT","potentialAction":[{"@type":"CommentAction","name":"Comment","target":["https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/#respond"]}]},{"@type":"WebPage","@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/","url":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/","name":"conect4children: standardizzazione dati pediatrici per malattie rare - Fondazione Gianni Benzi - ETS","isPartOf":{"@id":"https:\/\/benzifoundation.org\/it\/#website"},"primaryImageOfPage":{"@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/#primaryimage"},"image":{"@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/#primaryimage"},"thumbnailUrl":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/dimensioni-ottimali-per-wordpress.jpg","datePublished":"2024-04-15T09:07:14+00:00","author":{"@id":"https:\/\/benzifoundation.org\/it\/#\/schema\/person\/b927dbd45f2d82849380299ff732c266"},"description":"conect4children drives paediatric data standardisation and sharing, enhancing medicine testing for children.","breadcrumb":{"@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/#breadcrumb"},"inLanguage":"it-IT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/"]}]},{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/#primaryimage","url":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/dimensioni-ottimali-per-wordpress.jpg","contentUrl":"https:\/\/benzifoundation.org\/wp-content\/uploads\/2026\/01\/dimensioni-ottimali-per-wordpress.jpg","width":1200,"height":1000},{"@type":"BreadcrumbList","@id":"https:\/\/benzifoundation.org\/it\/conect4children-standardizzazione-dati-pediatrici-per-malattie-rare\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/benzifoundation.org\/it\/"},{"@type":"ListItem","position":2,"name":"conect4children: standardizzazione dati pediatrici per malattie rare"}]},{"@type":"WebSite","@id":"https:\/\/benzifoundation.org\/it\/#website","url":"https:\/\/benzifoundation.org\/it\/","name":"Fondazione Gianni Benzi - ETS","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/benzifoundation.org\/it\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"it-IT"},{"@type":"Person","@id":"https:\/\/benzifoundation.org\/it\/#\/schema\/person\/b927dbd45f2d82849380299ff732c266","name":"admin","image":{"@type":"ImageObject","inLanguage":"it-IT","@id":"https:\/\/secure.gravatar.com\/avatar\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/b53d43f1aaeceec75df4938b3e2a7ffb4ca7517db228bbe25ca85e468bfa6e26?s=96&d=mm&r=g","caption":"admin"},"sameAs":["https:\/\/benzifoundation.org"],"url":"https:\/\/benzifoundation.org\/it\/author\/admin\/"}]}},"_links":{"self":[{"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/posts\/4621","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/comments?post=4621"}],"version-history":[{"count":0,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/posts\/4621\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/media\/4620"}],"wp:attachment":[{"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/media?parent=4621"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/categories?post=4621"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/benzifoundation.org\/it\/wp-json\/wp\/v2\/tags?post=4621"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}