{"id":4616,"date":"2024-06-25T12:59:09","date_gmt":"2024-06-25T12:59:09","guid":{"rendered":"https:\/\/benzifoundation.org\/adolescenti-esperti-per-la-ricerca-sulle-malattie-rare\/"},"modified":"2024-06-25T12:59:09","modified_gmt":"2024-06-25T12:59:09","slug":"adolescenti-esperti-per-la-ricerca-sulle-malattie-rare","status":"publish","type":"post","link":"https:\/\/benzifoundation.org\/it\/adolescenti-esperti-per-la-ricerca-sulle-malattie-rare\/","title":{"rendered":"Adolescenti esperti per la ricerca sulle malattie rare"},"content":{"rendered":"<p>Sei un adolescente di et\u00e0 compresa tra i 12 e i 18 anni che vive con l&#8217;artrite (compresa l&#8217;artrite idiopatica giovanile rara, l&#8217;artrite idiopatica giovanile poliarticolare, l&#8217;artrite idiopatica giovanile sistemica, l&#8217;arterite a cellule giganti) o la sclerosi multipla? Sei interessato ad acquisire le competenze per partecipare attivamente alla ricerca scientifica e contribuire a sviluppare e plasmare i temi della salute, delle malattie rare, della ricerca innovativa, dell&#8217;assistenza sanitaria e dei diritti dei bambini?<br \/>\nL&#8217;iniziativa di <a href=\"https:\/\/www.ejprarediseases.org\/\" target=\"_blank\" rel=\"noopener\">EJP RD<\/a> e <a href=\"https:\/\/www.teddynetwork.net\/\" target=\"_blank\" rel=\"noopener\">Teddy Network <\/a>di creare un gruppo di esperti di pazienti pediatrici (PEG) \u00e8 l&#8217;ideale!<br \/>\nCome membro di questo gruppo, sarai coinvolto in corsi di formazione (online e faccia a faccia), attivit\u00e0 pratiche e preparazione di strumenti ad hoc. Il tuo compito sar\u00e0 sostenere i ricercatori che partecipano al progetto INVENTS con le vostre opinioni e i vostri suggerimenti e di rendere il progetto un successo per voi e per altri bambini affetti da una malattia rara.<\/p>\n<p>Ulteriori informazioni sulla registrazione e sul programma preliminare <a href=\"https:\/\/invents-he.eu\/recruitment\/\" target=\"_blank\" rel=\"noopener\">qui<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Sei un adolescente di et\u00e0 compresa tra i 12 e i 18 anni che vive con l&#8217;artrite (compresa l&#8217;artrite idiopatica giovanile rara, l&#8217;artrite idiopatica giovanile poliarticolare, l&#8217;artrite idiopatica giovanile sistemica, l&#8217;arterite a cellule giganti) o la sclerosi multipla? Sei interessato ad acquisire le competenze per partecipare attivamente alla ricerca scientifica e contribuire a sviluppare e [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":4604,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[224,193],"tags":[229],"class_list":["post-4616","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aggiornamenti-dai-progetti","category-ejp-rd","tag-paediatric-research"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Adolescenti esperti per la ricerca sulle malattie rare - Fondazione Gianni Benzi - ETS<\/title>\n<meta name=\"description\" content=\"Join EJP RD and Teddy Network\u2019s group to support research on arthritis, MS, rare diseases, and children\u2019s rights.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/benzifoundation.org\/it\/adolescenti-esperti-per-la-ricerca-sulle-malattie-rare\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Adolescenti esperti per la ricerca sulle malattie rare - 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