The article “Learning from conect4children: A Collaborative Approach towards Standardisation of Disease-Specific Paediatric Research Data” has been published in the journal MDPI on April 8, 2024.
This work originated as part of the conect4children project, in which Fondazione Gianni Benzi onlus is a partner, established to facilitate the development of new medicines and other therapies for paediatric patients.
The work draws attention to the fact that there are not enough medicines tested for all relevant ages in the paediatric population. To overcome this problem, it is essential that clinical data from different sources are interoperable and can be pooled for larger studies. The paper therefore traces the various steps taken by conect4children to promote and facilitate the standardization and sharing of paediatric data.
The article is available for free here.