Fondazione Gianni Benzi participated in the Monothematic Conference “Rare Diseases and Orphan Drugs” SIF4RARE Working Group that took place on 23-24 February 2024 at the Bari Chamber of Commerce. The conference was created with the main objective of promoting...
The conference “Il ruolo del farmacologo nell’applicazione delle metodologie innovative nella ricerca preclinica e clinica pediatrica”, organized by the Italian Society of Pharmacology (SIF), will be held on 21-22 March 2024, in Trieste, Italy
European Medicines Agency and the Heads of Medicines Agencies just launched two public electronic catalogues: one for real-world data (RWD) sources and another one for RWD studies
EMA recommended conditional approval of Casgevy, the first medicine using CRISPR/Cas9 gene-editing technology, for SCD and transfusion-dependent beta-thalassemia
EMA organises an interactive webinar on Rare Disease Day on 29 February 2024 to answer questions on orphan designations and orphan medicines development
Abstract submissions for the 12th European Conference on Rare Diseases and Orphan Products (ECRD 2024) are open by 23 February
New article “TISBE: A Public Web Platform for the Consensus-Based Explainable Prediction of Developmental Toxicity” just published
EMA issued a document on the Committee for Medicinal Products for Human Use early contact with patient and healthcare professional organisations
The Council for International Organizations of Medical Sciences (CIOMS) released the “International guidelines on good governance practice for research institutions”
The European Joint Programme on Rare Diseases is organizing a webinar on Real-World data, Machine learning and Deep analytics in rare diseases
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