by adminBenzi | Oct 7, 2024 | Events, News
We are delighted to announce that Fondazione Gianni Benzi will participate in the World Orphan Drug Congress 2024, which will be held in Barcelona from October 22-25. Our Head of Research and Innovation Department, Viviana Giannuzzi, will give a talk on "Ethics and regulatory guidance for not-for-profit research for rare diseases: the experience of a European funded programme" and join a panel discussion on How does Access to healthcare, treatment and diagnosis... 
by adminBenzi | Sep 30, 2024 | Events
Fondazione Gianni Benzi took part in the second edition of the Summer School ‘PREPARA - Paediatric peRsonalised ExtemPorAneous foRmulAtions’, an event organised by the Hospital Pharmacy School of the University of Bari ‘Aldo Moro’, in collaboration with Farmalabor srl and EPTRI. The summer school, of great relevance in the field of paediatric pharmaceutics, brought together experts in the field and young researchers to discuss the latest frontiers in the... 
by adminBenzi | Sep 23, 2024 | Events
The Annual Scientific Conference on Sickle Cells and Thalassaemia is a leading global event for healthcare professionals. It offers a comprehensive overview of the latest advances in the diagnosis, treatment and emerging fields of haemoglobinopathies. Find out more about the 19th edition by clicking here. 
by adminBenzi | Aug 7, 2024 | Events, News
On July 19, the kick-off meeting of the OrphaDev4Kids (OD4K) project was held in Bari, Italy. The OD4K is a 3-year project - coordinated by Consorzio per Valutazioni Biologiche e Farmacologiche (Italy) and involving 6 European Institutions - aiming to create an ecosystem that facilitates the bringing together of skills, knowledge, research ideas and financial resources, maximizing effectiveness and efficiency in developing innovative solutions for children with... 
by adminBenzi | Jul 25, 2024 | Events
The Foundation announces the launch of a new 36-month project called HemaFAIR, funded under the European Commission's Horizon Europe Twinning Bottom-Up programme (project No. 101159589). HemaFAIR, led by The Cyprus Institute of Neurology and Genetics, is conducted in collaboration with Vall d'Hebron University Hospital (Spain), Amsterdam University Medical Center and Leiden University Medical Center (The Netherlands). Bringing together internationally-recognised... 
by adminBenzi | Jul 16, 2024 | Events
The European Paediatric Translational Research Infrastructure (EPTRI) will hold its General Assembly and Scientific Meeting on 18 and 19 July in Bari, Italy. This key event will bring together researchers, industry representatives, healthcare professionals and patient advocacy groups to discuss the latest advances in paediatric research and how EPTRI can provide support through its specialised services. The European Paediatric Translational Research Infrastructure... 
